The HERO Study

HERO (Haemophilia Experiences, Results and Opportunities) is an international, multifaceted initiative that aims to deepen understanding of life with haemophilia. Find out some of the real-world impacts of living with haemophilia from across the globe.

Abdul Aziz Al-Armally

Abdul lives in Kuwait and has Haemophilia A

Find out key results from the HERO study

As the parent or carer for someone diagnosed with haemophilia you may wish to see the research that is going on around the world. The HERO study (Haemophilia Experiences, Results and Opportunities) is an international, multifaceted, multidisciplinary initiative that aims to deepen understanding of life with haemophilia. The HERO study looks at a number of different factors of living with haemophilia, from physical burden to mental health impacts, and even relationships and employment.

References

Novo Nordisk_HERO fact cards.The physical impact of haemophilia greatly influences quality of life. November 2015.

Talking to your healthcare team

Visiting your healthcare team can be daunting and you may feel overwhelmed. With that in mind, we have developed this short discussion guide.

Finding support

Since the diagnosis, you have probably been doing all you can to support your loved one. However, have you thought about yourself and looked for support?

What to expect following a diagnosis

If you have found out your child has haemophilia, you may struggle with a range of emotions and potentially feel a little overwhelmed. This page has been designed to act as a guide for you.

<b>Changing Haemophilia<sup>®</sup> video library</b>

Changing Haemophilia^® video library

We found that sharing knowledge and the experiences of others can provide new information and perspectives. Find a number of videos that portray many stories.