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Heinz lives in Switzerland and has Haemophilia A

Welcome to Changing Haemophilia®

Changing Haemophilia® was developed by Novo Nordisk to help address the unmet needs in haemophilia and other rare blood disorders.

We want to be lifelong companions for the haemophilia community, and help to create a future where everyone with haemophilia is diagnosed and can live a life with as few limitations as possible; as well as making more people aware of what it truly means to live with a rare blood disorder.

"Looking back at six decades of haemophilia treatment, the care of the haemophilia patient has changed enormously for the better."

Heinz lives in Switzerland and has Haemophilia A

We have created the Changing Haemophilia ® website with the aim to provide all people living with rare blood disorders a place that they can come to find support and advice, from us and from others. Here you will find information about the science behind blood disorders, advice and guidance on living with a blood disorder (from exercise and joint health to relationships, travel and mental health), as well as a dedicated area for parents and carers, and guidance on having discussions with your healthcare team.

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“In 2019, through the NNHF-supported project we managed to establish a group of nurses, physiotherapists and paediatricians dedicated to people with haemophilia in Northern Myanmar, where previously there was only myself.”

Shared NNHF project partner Dr Moe Hein

The Novo Nordisk Haemophilia Foundation

Novo Nordisk is proud to support the Novo Nordisk Haemophilia Foundation (NNHF). Since 2005 the NNHF has supported 292 programmes, creating sustainable impact in 77 countries.

The NNHF is a grant-making, non-profit organisation dedicated to improving access to quality care for people living with haemophilia and rare blood disorders in developing and emerging countries. Around 80% of people with haemophilia live in the developing world, where many people are still undiagnosed, and few receive adequate care. NNHF is driven by its vision that all people with haemophilia and rare blood disorders receive adequate care and treatment, wherever they live.

Learn more about the work Novo Nordisk Haemophilia Foundation’s partners have done and are doing, ‘Impacting care, together’.

Related Pages

Life & Haemophilia

Life & Haemophilia

Living with haemophilia is about so much more than the physical impact it can have. Haemophilia is a lifelong condition that affects so many aspects of a person's life.

About  Haemophilia

About Haemophilia

There are a number of different rare blood disorders that can affect a range of people, including haemophilia, rare clotting factor deficiencies and inherited platelet disorders.

Finding support

Finding support

Since the diagnosis, you have probably been doing all you can to support your loved one. However, have you thought about yourself and looked for support?