Talking to your healthcare team
Visiting your healthcare team can be daunting and you may feel overwhelmed. With that in mind, we have developed this short discussion guide.
If you have found out your child has haemophilia you may be struggling with a range of emotions and potentially a little overwhelmed from all of the information you have received. This page has been designed to act as a guide for you, providing information on looking out for a bleed, to finding other parents and support groups. Remember, you are not alone. While internal bleeding is trickier to detect than external bleeding - such as bleeding from cuts, nosebleeds or mouth bleeds - it’s critical to be aware of the signs and symptoms.
If you are ever concerned about a potential bleed in a child, always seek medical attention.
National Hemophilia foundation, Haemaware, Do You Know the Signs of These 6 Types of Bleeds. 2020. Available from https://hemaware.org/bleeding-disorders-z/do-you-know-signs-these-6-types-bleeds Last Accessed January 2021.
National Hemophilia foundation, Caring for your child with
World Federation of Hemophilia: Inherited Bleeding Disorders, 2020. Available from https://elearning.wfh.org/elearning-centres/inherited-bleeding-disorders/#bleeding_disorders[Last Accessed January 2021]
Peyvandi F, et al. J Thromb Haemost. 2016;14:2095-2106