Talking to your healthcare team
Visiting your healthcare team can be daunting and you may feel overwhelmed. With that in mind, we have developed this short discussion guide.
HERO (Haemophilia Experiences, Results and Opportunities) is an international, multifaceted initiative that aims to deepen understanding of life with haemophilia. Find out some of the real-world impacts of living with haemophilia from across the globe.
HERO (Haemophilia Experiences, Results and Opportunities) is an international, multifaceted, multidisciplinary initiative that aims to deepen understanding of life with haemophilia. The HERO study showed that many people living with haemophilia and parents experience psychological/psychiatric conditions, due to the impact of haemophilia, yet few receive treatment.
of people living with haemophilia have reported having psycological/psychiatric conditions
of people living with haemophilia have received treatment for their psychological conditions
of parents have received psychotherapy or counselling their son’s haemophilia
of parents would have liked to (but did not) receive psycological support
these results demonstrate the need for psychological support for people living with haemophilia and their careers
Novo Nordisk_HERO fact cards.The physical impact of haemophilia greatly influences quality of life. November 2015.