Go to the page content

Renato lives in Italy and has Haemophilia A

The HERO Study

HERO (Haemophilia Experiences, Results and Opportunities) is an international, multifaceted initiative that aims to deepen understanding of life with haemophilia. Find out some of the real-world impacts of living with haemophilia from across the globe.

The HERO Study demonstrates the impact of haemophilia on mental health

HERO (Haemophilia Experiences, Results and Opportunities) is an international, multifaceted, multidisciplinary initiative that aims to deepen understanding of life with haemophilia. The HERO study showed that many people living with haemophilia and parents experience psychological/psychiatric conditions, due to the impact of haemophilia, yet few receive treatment.

of people living with haemophilia have reported having psycological/psychiatric conditions

of people living with haemophilia have received treatment for their psychological conditions

of parents have received psychotherapy or counselling their son’s haemophilia

of parents would have liked to (but did not) receive psycological support

these results demonstrate the need for psychological support for people living with haemophilia and their careers

Find out more on the HERO Study


Novo Nordisk_HERO fact cards.The physical impact of haemophilia greatly influences quality of life. November 2015.


<b>Talking to your healthcare team</b>

Talking to your healthcare team

Visiting your healthcare team can be daunting and you may feel overwhelmed. With that in mind, we have developed this short discussion guide.

<b>Haemactive app</b>

Haemactive app

The HaemActive app has been designed specifically for haemophiliacs and features clear demonstration videos to help people to exercise safely and correctly.

<b>Changing Haemophilia<sup>®</sup> video library</b>

Changing Haemophilia® video library

We found that sharing knowledge and the experiences of others can provide new information and perspectives. Find a number of videos that portray many stories.

<b>Mental health</b>

Mental health

Discover more about the mental health impacts of living with haemophilia and where to find support for yourself or a loved one.